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The Left Atrium
CMAJ 2001;165(3):319-22


Contents
• A few false notes [PDF] • Missing persons [PDF] • A mother's guilt [PDF]

A few false notes

The ethical canary: science, society and the human spirit
Margaret Somerville
Toronto: Viking; 2000
344 pp. $33.99 ISBN 0-670-89302-1

Long before the term was coined, miners used a kind of "bioassay" approach to monitor threats to their lives. Sensitive to plummeting oxygen levels, canaries kept in the mines would cease their singing, and often die, signalling to underground workers that it was time to save themselves by retreating. In The Ethical Canary: Science, Society and the Human Spirit, Margaret Somerville explores the ethical hazards born of the science, technology, practice and policy of postmodern health care. Her accounts are lucid, engaging and persuasive — sometimes dangerously so.

Somerville posits two warning signs that she argues must guide ethical deliberation in a postreligious era. A decision or action is "inherently wrong" if it "fails to show respect for life, in particular human life" or if it "puts at serious risk or harms the human spirit." Respect for life and the human spirt defines what Somerville names the "secular-sacred." These values are indisputably important, but Somerville develops her argument in a way that reduces any position that does not accommodate instrinsic values to a form of ethical relativism (whereby ethical values are seen as merely culturally and historically situated phenomena). This sleight of hand diminishes the depth and nuance of a centuries-old discourse between deontologists and utilitarians. From this perspective, the question of whether something "does any good" is discounted by a concern with whether it is "inherently wrong" rather than balanced by the question, "What or whom does it harm?"

If the aim of this text is to educate, its framework for bioethical analysis is seriously flawed; if the aim is to provoke, we must applaud its success. Where one expects a complex opus, the counterpoint is not even hummed; rather, its existence is unstated or ignored. This is my principal complaint with this important work: arguments are presented as rigorous where, in fact, fundamental aspects of the score are absent. The book proceeds to examine myriad domains of ethical debate, each of them headline grabbers. Chapters are devoted to the explication and analysis of far-ranging topics, including assisted human reproduction, euthanasia and male circumcision. Each of these is cogently penned, yet there is unevenness between and within accounts.

In writing on the ethics of human reproduction, Somerville makes the important point that children born as a result of new reproductive technologies ought to placed at the centre of our deliberations about those technologies. A great deal of the analysis is devoted to her reservations about assisting same-sex and single parents to have children. Although Somerville stresses that she does not wish to reinforce negative stereotypes of these groups (as if they were monolithic!), she repeats her concern that to use reproductive technologies to help these people is problematic. This is on the grounds that the resulting children may not have both a female mother and a male father to parent them; that there is "evidence" of failure in parenting male children by single mothers; and that, although it would be wrong to prohibit such people from establishing families without the aid of technological assistance, we need to be wary of the values our policies support. Given our uncertainty about what constitutes good, let alone the best, families, I would have been more interested in Somerville's analysis, from her child-centred perspective, of the impact of what seems to be the inevitable commercialization and commodification of bringing children into the world.

In a chapter dedicated to the euthanasia debate, much attention is given to the problem that failure to provide adequate pain control contributes to the desire of some terminally ill people to end their lives. This is a documented problem that merits attention; shocking examples of failure to provide palliative medication to dying patients are contained in this chapter. Unfortunately, the author takes a narrow view of pain, one that is preoccupied with its physical or nociceptive dimensions. Although Somerville cites Balfour Mount, his compelling work on the concept of "total pain," which includes physical, psychosocial and existential suffering at the end of life, is ignored. An exploration of this concept and its implications for ethical care at the end of life would have strengthened Somerville's position against the voluntary euthanasia of competent patients. It would also have demanded that she address the suffering of terminally ill patients that is not ameliorated by narcotics.

By contrast, a chapter devoted to the very controversial issues around routine male circumcision is more balanced, and clearly articulates the ethical problems in rationalizing the alteration of little boys' genitals for nonmedical reasons. This is a subject to which Professor Somerville has dedicated a great deal of research and reflection, and concerning which she has endured much rebuttal. Interestingly, the balance lies in her conclusion that the issues are complex and nuanced, and that sweeping prohibitions against the practice as it relates to deeply held religious belief and to ethnic traditions are problematic. Had the same level of rigour been applied to other chapters, we might have gleaned a very important lesson from this work: that dogmatic approaches to complex ethics are very difficult "where the rubber meets the road."

This is a book to be read, but not uncritically. The text provides important stories reflecting some of the rich landscape of our ethical challenges. The subtext provides stories at least as important for our reflection.

Michelle A. Mullen
Assistant Professor of Paediatrics
   and Women's Studies
University of Ottawa
Bioethicist, Children's Hospital
   of Eastern Ontario
Ottawa, Ont.


Contents
• A few false notes [PDF] • Missing persons [PDF] • A mother's guilt [PDF]

Lifeworks
Missing persons

My grandfather discovered that he was going to die while sitting across a desk from his doctor. Apparently the doctor reviewed the test results, looked up, and said, "You have lung cancer. You're going to die." At least that's how my grandmother remembers it. My 77-year-old grandfather spent the winter cross-country skiing and the spring playing golf. Six months after the doctor's pronouncement, he was dead.

Richard Robertson, Sofa, 1980. Graphite and wash on paper.
Art Gallery of Hamilton, Gift of Wintario, 1980
(No) Vacancy, a quiet group exhibition on view at the Art Gallery of Hamilton until Jan. 6, 2002, claims to be about "presence and absence in post-modern representations of the human body." Clearly, it is. There are no traditional figurative images or textbook sketches of human anatomy here. From a scholarly perspective, the exhibition opens up a flood of possibilities for a dissertation on postmodernism. But from a casual viewer's point of view, (No) Vacancy isn't as much about the body as it is about the loss of the body: of any body, or of somebody. After all, postmodernism is predicated on the notion that the interpretation of an artwork does not exist outside the personal experience of either the viewer or the creator. The exhibition's signature piece, Sofa (1980) by Richard Robertson, encapsulates these ideas, and it's an excellent start to this exhibition.

I knew the influence my grandfather had on my life; what I wasn't prepared for was the effect of his absence. As I looked at Robertson's Sofa that absence was recalled to me. This piece is as much about what isn't there, as about what is. A large-scale pencil drawing of a couch shrouded in a white sheet, Sofa is true to its realist style right down to the Ken Danby-like detail in the parquet flooring. It could easily be mistaken for a photograph. Yet a closer look reveals scratches and folds in the paper. These conscious imperfections remind the viewer that this picture is a painstakingly rendered construction. The result is strangely dramatic and understated. The viewer is left to draw from personal experience and insert an absent body onto the couch and into the drawing.

Les Levine's series of untitled photo-based aquatints on paper is equally vigil-like, but laments the missing body more overtly than Sofa. Each of the eight images contains a circle of candles; inside each circle is a different piece of clothing: eyeglasses, a bandana, sweater, jacket, T-shirt, a man's underwear, socks and shoes. Reaching the end of the series, the viewer is almost able to construct an image of this person on the basis of his clothing selection, and consequently to postulate ethnicity, character and social status. Again, the actual individual is missing. Except here the substitute is someone imagined rather than known.

Before the experience of this exhibition becomes too morose, the curator includes several works over 20 years old that reflect the decades they were created in. Jasper Johns' The Critic Sees (1967) adds a subtle edge of levity to the show. Johns, an American with links to the Pop art movement of the 1970s, has created a primarily white piece of paper with a pair of embossed eyeglasses in the centre. On each eyepiece is a sheet of acetate containing the word "mouth." Trapped Shirt (1977) by Andrew Smith is a white shirt pressed into handmade paper and encased behind glass. The artist calls this process "pulp painting." This piece echoes Levine's preoccupation with clothing (rather than the physical self) as a source of identity.

Brian Wood, Array, 1977. Chromogenic prints on paper.
Art Gallery of Hamilton, Gift of Wintario, 1980
Finally, Brian Wood's Array (1977) would be thematically out of place if it were not for its connection to Sofa. Wood's background in cinematography and Cubist painting is apparent in his collage-style grouping of square colour photographs. The image of a middle-aged white man is recognizable, but overlapping him are other photographs of a 1970s suburban home, cars, furniture and other people. His "body" is thus made up of material and domestic comforts.

If Sofa is the opening line of this exhibition, Geneviève Cadieux's work is the exclamation point. Known for her work with large-scale colour photographs of human body parts, Cadieux makes a natural addition to (No) Vacancy with untitled (Dos) (1994), a close-up photograph of a human back. Gender is not clear, but judging by the gray hair the subject is older. What we see is a clinical view of a person's back, complete with imperfections and flaws so different from the airbrushed images we are used to seeing in magazines.

What we also see in Cadieux's work is vulnerability, and this is true of the entire exhibition. Any art show concerning the body can't help but include references to the limitations of our physical selves. Mortality is the great unifier, not only because we will all eventually die, but more importantly because we all know someone who has.

Sherri Telenko
Hamilton, Ont.


Contents
• A few false notes [PDF] • Missing persons [PDF] • A mother's guilt [PDF]

A mother's guilt

So this med student calls the other day and asks
What do you think about ADD?
Like it was some sort of poll.
And I'm thinking,
How did you get my name? Who gave it to you?
Leave me alone!
Leave my son alone.
He's just trying to live a life
by your rules; with your labels.

You know, nothing really scientific pops into my head
when someone says ADD.
I'm sure the little white-coat was looking for stuff like:
Inability to concentrate, acts impulsively

you know, the medical works.

What I see in my mind are things like report cards:
Bright, promising young man,
If only he could apply himself more, and focus.

I see five years, in five different doctors' offices:
There is nothing wrong with your son, ma'am.
Open your eyes, he's the best-behaved child in this office.
If you are really having problems at home
it's nothing that some good discipline won't cure.
Have you considered parenting courses?

I was convinced
that anyone else could raise this child better than I could.
That doesn't make sense now, of course;
my other children were fine.
But we took a year of parenting courses.
My son wrote lines every time he did something impulsive.
He lost privileges, including the furniture in his room
whenever he acted out ... well ... exploded.
I have an image of a room
stripped bare
except for a mattress.
Everything children have or do is a privilege.
That's what they teach you in parenting courses, you know.

I see my marriage
hanging on by a thread:
Listen, honey, you heard the doctor,
there is nothing wrong with our son.
I'm only gone for 9 hours a day
and he's in school for 5 of them. Get along.
You've got to be firm with him.
You can't expect him to listen to everything you say.
Pick your battles.
Stop egging him on.
Well, of course he doesn't behave like his sister.
He's all boy.
What is your problem?
Aw, hon, don't cry. We're in this together.

I see the faces of my other children:
the fear every day after school that there'd be a fight,
the tears when they heard their brother spanked
and their parents yelling,
huddled in a room,
trying to block out the noise of the fighting,
the anger in their eyes toward a brother
they couldn't understand,
who was tearing their family apart.
And the guilt.
How could I pass guilt on to children that young?
Mom, he doesn't need a shrink.
Translation: Please don't go to that doctor or he'll find out
how I tease my brother and know it's all my fault.


And I remember the fights.
Oh my God, the fights.
He'd come home from school
with that half-crazed look in his eye.
a time-bomb ticking.
He had sat still, trying to be good all day
and he couldn't stand it anymore.
He would blow,
I would yell,
someone or something always got hurt.
And afterwards, we would talk:
You know, you really are a good kid, a caring person.
But there is something wrong here,
this just isn't normal.
I know, Mom.

His voice would break.
I don't know what is wrong with me.
I hurt too many people.
I just shouldn't be alive.
I want it to end.

I think he was nine then.

And then there was the diagnosis.
Took the shrink damn near a year to make it.
My son, he was not misdiagnosed.
It was a relief to have a reason.
A reason to assure him he was not bad.
Something concrete to work with and try to alter.
A reason to give people for all of his differences.
Of course, he doesn't look different,
so they'll always expect him to act like he doesn't have ADD.
They'd rather not admit there's something they can't explain.
They'll never accept that he runs to the beat
of a different drum.
It's easier to claim bad parenting.

Other parents don't get it.
How can they, when their kids can sit for 5 minutes without
crying
screaming
lashing out
and do their math homework.
How dare they judge us?
How dare they question the existence of ADD?

Were we looking for an excuse?
Are people with dyslexia looking for an excuse
for not reading?
Maybe I wasn't right to let the doctor give him a label.
Maybe I needed the diagnosis more than he did.

When I look back, I see oh so many pills.
Gravol at Christmas
so that he'd go to sleep and Santa could come.
Gravol at his birthday
so he wouldn't hit the other children.
If I could have given him Valium I probably would.
What kind of mother drugs her kid all the time?
And Ritalin.
Our doctor calls it Vitamin R.
I don't care if it is overprescribed,
as long as it works.
You have no idea how real ADD is
until you've seen your child reassess the world on Ritalin.
Normalcy.
That crazed look in his eyes of immediacy and fear,
so much fear,
fades.

The worst memory, though,
is the sound of my own voice:
Sit still and do it
Would you quit that incessant tapping, you're driving me mad
Godammit, look at me when I'm talking to you
You've made your siblings afraid of you
Don't you ever call me a bitch again, that's 400 lines
If you can't get a grip on yourself,
you're never going to make it in this world

You have so much potential, why can't you just focus
You're tearing this family apart
Why can't you get your shit together

I can't brush that off as frustration.
No matter how wrong
the doctors and teachers may have been,
no matter how well my other children may have turned out,
no matter how much ADD played a role
in my son's behav iour,
no matter how happy the family is now,
no matter how well he is getting along,
no good parent
would have said the things I've said to my child.
My baby. My little bird with a broken wing.
I was supposed to make the world better for him.

Jennifer Foster
Second-year medical student
Dalhousie University
Halifax, NS

 

 

Copyright 2001 Canadian Medical Association or its licensors